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Life with Rare Disease

You get that call you feared. You have cancer. Hours go by. You decide how you’re going to tell your family. You research treatments and statistics. You start to wonder if you’re going to die.

This was a reality for Frank Rivera.

In 2004 he started having breathing issues and couldn’t walk for any amount of time. He was also experiencing severe cough and pain in his lungs. After a biopsy showed lumps in his lungs his doctor would diagnose him with lung cancer.

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