They ranged in age from 15 to 61—four African-Americans, all with stories to tell about their struggles with sickle cell disease, all with stories about a common experience that helped them through those struggles: participating in clinical trials.
The panelists, who had joined trials funded by NIH, spoke to a standing-room-only session at the Annual Sickle Cell Disease Clinical Research Meeting, hosted in August by NIH’s National Heart, Lung, Blood Institute, Division of Blood Diseases and Resources.
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